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28-03-2024
DEMENTIA - THE CARING EXPERIENCE
DEMENTIA - THE CARING EXPERIENCE
Dementia, the broad term used to define the symptoms of a large group of brain diseases that are progressive and terminal, destroys a person’s cognition, memory, intellect, their ability to socialise and affects their behaviour and personality. These changes impact the physical, social, and emotional life of not only the person with dementia, but also those who care for them namely, their families, carers and friends. There are different symptoms of Dementia, and each has its own cause. Alzheimer’s Disease is the most common cause of Dementia; some others are Vascular Dementia and Lewy Body Disease.
Remember - Dementia is NOT a normal part of ageing. It is a disease.
If you are caring for someone with dementia, it is important to take regular breaks to relax/recharge, in order to keep up your health and morale.
Take a break
One way to do this is to arrange regular Respite Care for the person with dementia. Respite gives you a break from constant caring, which can be physically and emotionally demanding. Enjoying some ‘time-out’, helps you return to your caring role refreshed. Respite also benefits the person with dementia, as it introduces them to different people and activities. Family and friends may help take over the caring role from you sometimes; when this is not possible, there are services that offer different types of Respite Care. Respite may be in-home, day-care, short or long-term or even a break away together with additional help.
Carers Gateway - 1800 422 737 (assists identify respite care available for Carers).
National Dementia Helpline – 1800 100 500
Dementia Behaviour Management Advisory Service – 1800 699 799
Remember - though the change in environment may be initially disturbing to some persons with dementia, they usually settle in. Many families and Carers have found it beneficial to start regular respite care as early as possible, so that everyone has time to get used to it.
Needless to say, your decision is respected.
TMCCA
Source: Australian Govt. – Dept. of Health & Ageing. A Guide for families and carers of people with dementia.
Patricia Arora
TMCCA

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